Palliative carers, you matter!
Accidental Carer, a practical guide through uncertainty by palliative home carers shines a light on the practical choices made by those caring for a family member or friend diagnosed with an end of life illness at home. The title – The Accidental Carer – describes thousands of people suddenly finding themselves in this important role: unprepared, unseen and depended upon.
Palliative care is the term used by the medical profession for care that provides comfort rather than cure. Palliative caring at home can mean a huge life change.
The Accidental Carer began when Ros Capper noticed the lack of available information by home based palliative carers about their hands-on experiences. A book, website and Facebook page are our first initiatives to encourage compassionate community: carers, families, friends, professional support people and researchers: everyone to the wheel! Or is it under the pump?!
Our new book ‘The Accidental Carer, a practical guide through uncertainty by palliative home carers’ has contributions by five home-based palliative care families. Brief, clear and written with a light touch, the book is for carers treading a likely path of uncertainty, mystery, multi-tasking and unanticipated gifts. The book also includes really useful suggestions for wats family and friends can contribute their support.